California’s privacy regulator has fined a Texas data broker $45,000 and banned it from selling Californians’ personal information after it sold Alzheimer patients’ data. Texan company Rickenbacher Data LLC, which does business as Datamasters, bought and resold the names, addresses, phone numbers, and email addresses of people that suffered from serious health conditions, according to the California Privacy Protection Agency (CPPA).
The CPPA’s final order against Datamasters says that the company maintained a database containing 435,245 postal addresses for Alzheimer’s patients. But it didn’t stop there. Also up for grabs were records for 2,317,141 blind or visually impaired people, and 133,142 addiction sufferers. It also sold records for 857,449 people with bladder control issues.
Health-related data wasn’t the only category Datamasters trafficked in. The company also sold information tied to ethnicity, including so-called “Hispanic lists” containing more than 20 million names, as well as age-based “senior lists” and indicators of financial vulnerability. For example, it sold records of people holding high-interest mortgages.
And if buyers wanted data on other likely customer characteristics and actions, such as who was likely a liberal vs a right-winger, it could give you that, too, thanks to 3,370 “Consumer Predictor Models” spanning automotive preferences, financial activity, media use, political affiliation, and nonprofit activity.
Datamasters offers outright purchase of records from its national consumer database, which it claims covers 114 million households and 231 million individuals. Customers can also buy subscription-based updates too.
California regulators began investigating Datamasters after discovering the company had failed to register as a data broker in the state, as required under California’s Delete Act. The law has required data brokers to register since January 31, 2025.
The company originally denied that it did business in California or had data on Californians. However, that claim collapsed when regulators found an Excel spreadsheet on the website listing 204,218 California student records.
Datamasters first said it had not screened its national database to remove Californians’ data. After getting a lawyer, it changed its story, asserting that it did in fact filter Californians out of the data set. That didn’t convince the CPPA though.
The regulator acknowledged that Datamasters did try to comply with Californian privacy laws, but that it
“lacked sufficient written policies and procedures to ensure compliance with the Delete Act.”
The fine imposed on Datamasters also takes into account that it hadn’t registered on the state’s data broker registry. Data brokers that don’t register are liable for $200 per day in fines, and failing to delete consumer data will incur $200 per consumer per day in fines.
Starting January 1, 2028, data brokers registered in California will also be required to undergo independent third-party compliance audits every three years.
“History teaches us that certain types of lists can be dangerous,”
Michael Macko, the CPPA’s head of enforcement, pointed out.
Research has told us that Alzheimer’s patients are especially vulnerable to financial exploitation. If you think that scammers don’t seek out such lists, think again; criminals were found to have accessed data from at least three data brokers in the past. While there’s no suggestion that Datamasters knowingly sold data to scammers, it seems easy for people to buy data broker lists.
It also doesn’t take a PhD to see why many of these records (which, remember, the company holds about people nationwide) could be especially sensitive in the current US political climate.
There’s a broader privacy issue here, too. While many Americans might assume that the federal Health Insurance Portability and Accountability Act (HIPAA) protects their health data, it only applies to healthcare providers. Amazingly, data brokers sit outside its purview.
So what can you do to protect yourself?
Your first port of call should be your state’s data protection law. California introduced the Data Request and Opt-out Platform (DROP) system this year under the Delete Act. It’s an opt-out system for California residents to make all data brokers on the registry delete data held about them.
If you don’t live in a state that takes sensitive data seriously, your options are more limited. You could move—maybe to Europe, where privacy protections are considerably stronger.
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